Ground breaking research: Can PCOS be an autoimmune disease?

This could be a game changer.

I described in my post, “My diagnosis of PCOS is bullshit” how I thought how my PCOS was just a convenient diagnosis. “Currently, the diagnosis of PCOS is typically made using the Rotterdam criteria, which require two of the following three to be present: oligo- or anovulation; clinical and/or biological signs of hyperandrogenism; and detection of polycystic ovaries by ultrasound”.

I was discovered to have: hardly any ovulation, a slightly fluctuating thyroid, and some cysts on my ovaries. I know, how could I deny that I have PCOS, well initially I was a denier and totally thought it was all crap but……

I did a glucose test where they tested how well I tolerate sugar intake, and within the first hour my glucose readings spiked and I remember I was really dizzy. With PCOS there is an increased risk of diabetes.

According to Fiona McCulloch ND, one of the causes of PCOS is because of inflammation and food sensitivity. No one at the fertility clinic EVER asked me about my diet and how much sugar I’m eating or if my diet is balanced.

But what if just simply checking off symptoms there could actually be a test for PCOS?

Groundbreaking Research Representing a Paradigm Shift

“If we had a test, like the one we have for thyroid disease, not only endocrinologists would find that useful but ob-gyns and even primary-care physicians could use it to diagnose the condition earlier and then refer to endocrinologists to let us manage it. It would speed things up,” Dr Dodell told Medscape Medical News”. Moreover, he said that the demonstration of an autoimmune etiology for PCOS is intriguing and a departure from the medical community’s understanding of the condition: “This is the first time I’ve heard this.…It’s paradigm-shifting.”

See study here: http://www.medscape.com/viewarticle/879642 

Ok, what does this ACTUALLY mean?

  1. They could make a simple blood test that could test for PCSO instead of wasting tons of time trying to figure out what is going on.
  2. It means they can find treatment and maybe even a medical cure.
  3. The medical community may actually become more open to @soulandfertility Eastern influences to treating PCOS.

What needs to happen to make it standard practice?
More research!!!!

Remember, that the first IVF took place just 30 years ago, this is a really new science and we’ve moved so far. There are many unanswered questions, maybe this will answer one?


Resources:

http://www.medscape.com/viewarticle/879642

https://plantingtheseedsbook.wordpress.com/

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The two week wait is our Hotel California

The whole thing about infertility that is crazy making boils down to uncertainty and lack of predictability. Every two-week wait (exactly as described in this link) is riding high on what your life will or will not look like after these two weeks. Since I am so overly aware of what is going on, its hard not to have multiple moments in the day where my thoughts trail off into LaLa land of what could be and have rose coloured glasses of parenting. A lot rides on these two weeks, but the part that is crazy making is that the medications they give me mimic signs of pregnancy. Did a man invent these drugs?

What is the two-week wait, you ask? It’s that seemingly interminable time period after you ovulate and before you can take a pregnancy test. Its exactly two weeks where you have zero control and its up to God. Yes, it’s an insane time because you are also wondering what else you can do or not do to have a positive outcome….its *crazy making. I googled, “Crazy making” and google told me it’s a form of emotional abuse involving things such as mind games, intended to make you question yourself. OMG. I’m rolling over in laugher, that’s exactly what I’m experiencing, except I’m doing it to myself. ROLFLOL….and then all of sudden I got a flash of clarity in my head after I read that definition. It’s like Hotel California, once you are in, you may never leave. Seriously, check out the lyrics I put together…..

Welcome to our Hotel California, its such a lovely place. There is plenty of room at the Hotel California (because of the constant flow of patients)…..We are all just prisoners patients here of our own device….Last thing I remember, I was running for the door to find the passage back to where I was before, relax said the man doctor, you can check out anytime you like, but you may never leave…..

This is not the first time  I’ve done the two-week wait. When you search google “two-week wait”, the resources are endless. I find that the first week is a week of hope, the second week so far usually been a week of sadness and why you’ve seen posts like, “No more needles! No more ultra sounds! No more 8am clinic visits! No more of this! Please make this STOP. and “Five lessons : Finding your voice and speaking up for yourself.

Because when you are going through the process of infertility, you are hyper aware of all your body functions all…..the…..time…… I’m going to assume, that most fertiles simply go on with their life after you’ve had, um, sex, and don’t think much about a ‘two week wait’. I actually don’t really know how that feels likes. But I don’t think you are sitting counting down days till you go in for a pregnancy test. Are you?

Usually, the first week is filled with tons of stuff I do and I actually don’t think about it. The second week draaaaaaags on. This is where the anxiety, the mental health and all of this crash together like a water hitting rocks. Physically, my body starts to shut down and I need to sleep it off. Mentally, the drag of one more day till the test, wears me down. As well, the knowledge that my body feels like it felt like the other ten times during the two-week wait where the results came back negative. But you sit there, hoping and waiting.

The actual results are a simple blood test (that I’m sure some of you have done) and then God Calls,  with a yes or no answer and says, “come at the start of your period” and do the whole thing all over again, for shits and giggles.

team_crazy_train

My fantasy has been to book a trip in the two-week wait to totally get away. Didn’t manage that this time around. It’s amazing how even now booking a trip, I take into account the Zika Virus. That limits travel to the USA and Europe. What do you think, should we go to Portugal? Uruguay, the backpackers heaven? Tell me which one I should go to in the comments.

This two-week wait period ends without me being able to bring myself to go and test, because I know its negative. My body has starting to shed and menstruate. This time around, the natural cycle we tried, with some additional hormonal help, it didn’t work.

I think what Husband identified, is that there is no stopping this wheel once it’s started. NO one told me that once you step in this crazy train you can’t get off. It keeps spinning because as soon as we find out that the test is negative, its the start of a new cycle because its period time. On day three of the period, I need to go in with a full bladder, do my full blood work and declare what of treatment I am doing this time around all within a matter of a day of finding out you’re not pregnant….all while grieving the loss of what just happened.

Crazying making

This is why people in fertility clinics go bat shit crazy. It’s like Hotel California. Once you enter you may never leave, because even if you leave, it’s still on your mind.

Because God keeps calling, leaving a message, saying, “We’re, sorry, please dail the number and try again”.