At the beginning of March, I met with the Patient experience officer and Dr. B after the failure of a fertility cycle. It was a two-hour emergency meeting. It happened because I was falling apart. We met because I felt like a number. I felt I wasn’t listened to and no one was hearing my concerns. I didn’t know who to turn to because if I asked the nurse the nurse couldn’t make any decisions and there were too many people involved in my care. I wanted one or two dedicated nurses who knew everything on file. I needed to tell them their support group sucked. The waiting room was one anxious space and nothing goes well at the clinic if you are not following one of the prescribed fertility boxes of procedures.
I needed to find MY voice in this entire runaway train and I needed to be heard.
I had no idea that my verbal dump changed many things at the clinic. Two months after this meeting and after my two-month break from not being at the clinic, I’ve become aware of results of this meeting.
Early morning, I’m sitting in the waiting room of the clinic. The chairs are plastic and white the walls are Tiffany blue. The door next to the reception desk opens and closes every few minutes with a sight bang. I wait my turn to see the doc. to figure out what drugs I need for the embryo transfer. I see Vee, The patient experience, walking into the waiting room and out. She waves and smiles as she sees me and stops, saying, “I really want to talk to you!”. I say, “we can talk now, I’m just waiting for one instruction but it’s not urgent”. She motions me in, we open the door, I hear the slight bang as it closes and I followed her down the hall into the boardroom of Anova. Cool, the board room. I’ve never been here, just the dark ultrasound rooms and the doc’s room. Vee seems so excited to talk to me. I wonder why…..
We sit down across from each other and talk about how I’m doing after the two-month break and the fact that I seem to be glowing. I am relaxed. I feel more chilled and definitely more grounded. I’ve put fertility into a box. Just one of the boxes that are me and it no longer rules my world. When I reflect and think about myself and who I was January until May, I don’t recognize myself. I’m so glad I took a break.
At one point, Vee stops and looks me in the eye and says, thank you. I’m confused what for…..? She looks me right in the eye, puts her hands together and says, “Thank you for speaking up, very few actually do. We don’t know how we can be better if someone doesn’t tell us, we can just think what we can do but are not on the other side. We have taken all your comments, complaints and observations and have changed our entire counseling department. We are still not perfect but want to let you know you have made an impact on for other patients”.
Needless to say, I’m shocked because I think back how much I was hurting during that time and how long the 2.5 hr meeting was with Dr. B and the Vee. I remember I wanted to write about it but was so drained from the conversation I couldn’t bring myself to blog about it.
I tell Vee that I’m so glad this is going on and I hope that I can continue to be a voice for many patients.
What I want the clinic to recognize is that part of functional care and holistic care is to incorporate; counseling, mindfulness, hypnosis and other modalities so we can support the whole person not just the uterus, the egg or sperm.
Find your voice. We want to hear you.
You are not your diagnosis.
Don’t be afraid to let the clinic know what is not working for your treatment, you just never know, you may the catalyst for massive change.